March 31, 2019

The Lord is full of compassion and mercy. James 5:11

My last blog entry was when I finished 6 cycles of chemotherapy for Invasive Cortical Thymoma. A lot has happened in the months that followed, including me undergoing 24 radiotherapy sessions, that begged to be shared in another blog entry I hope to write soon. I want to share though the most recent development.

Last March 27, I received my PET/CT scan result and it was not good. There is progressive malignant disease. The mediastinal mass increased in size. There are lesions on my lungs and kidneys. Abnormal lymph nodes are all over my chest and abdomen. But, on the same day, the result of the slide review of my previous biopsy came out as Primary Mediastinal (Thymic) Large B-Cell Lymphoma (PMBCL).

PMBCL is a high-grade (aggressive), rare type of non-Hodgkin lymphoma.

It now fits what has been happening to me. For almost a year of treatment whose goal was palliative, not curative, we couldn't make sense of the aggressiveness of my disease. My body and spirit have been through so much pain that it amazes me how I made it through. It was definitely supernatural. The Lord has carried me!

There is miracle in misdiagnosis. Though still in Stage 4, I have better survival chances with this type of cancer - even a chance of remission or cure. And, though relapse may still happen, there are more treatment options. The Lord is merciful! Oh, how I was disheartened when I found out one of my doctors said I would only live until December 2018. But friends, His mercy is renewed everyday!

I am to start chemotherapy for PMBCL. I dread the journey ahead but I know the Lord got me! And, I am blessed to have a good support system. The treatment is costly. At present, my treatment plan is R-CHOP in every 3 weeks. These are 5 different drugs. 1 of them costs Php 100,000+ per vial and I would need 8 infusions. There is an access program for this drug that we're looking into. The other drugs are for 6 cycles. My family and friends are planning for fundraisers. I humbly ask you to support them, my friends. I also ask for prayers. Our prayers have stormed the heavens.

I will fight the good fight of faith. I'll make known the Lord's goodness and faithfulness in my life! Rising is in my name - Lenie ROSE. It's even grammatically correct and a simple sentence. And, it's in the past tense. I did it. I rose. So, I will do it again. And, I will keep on doing it until the day I will be called to rise to eternal life.